Day 4 Tamoxifen....not 3 oops.

Okkkkkkkkkkk. The side effects seem to have kicked into high gear. Here it is freezing cold - at least for the south. We got the heater cranked up, the blankie on - I even have a coat on. But then those damn hot flashes hit overdrive and I start sweating - so I uncover and take the jacket off. I'll be damned if all the sudden I'm not cold again cause the sweat on my brow was hit by the chill in the air. How is it possible to be both hot and freaken cold? The ONE side effect I was hoping to gain with this new med was WEIGHT LOSS. Of course that would require me to get off my ass, sign off the computer and actually use that treadmill we bought last year. But I can't cause I don't like sweating and I hate hot flashes, but I don't like the cold and I hate snow - so I have to live somewhere warm, but for some god forsaken reason it's been unseasonably cold here this past week. So I just can't win and I worry that this new med is destined to make me miserable or if I will adjust to it sooner or later. I guess it doesn't matter as long as it works - but fact is my hot flashes haven't been this horrible since I had my hysterectomy.
Ok, now I'm cold again, so time to put the jacket back on.
Just remember - this rant was brought to you by Tamoxifen, the breast cancer med of choice for over 30 years.

The Results Are In....(drumroll)

This morning I had my appointment with my oncologist to get my PET scan results and ultimately find out if I will need to do chemo or not. I've been feeling pretty good about this - kinda like a new year, fresh start. I mean seriously - at some point your luck's gotta turn right?

My PET scan came back with the following findings:
Physiological activity is present within the brain, oropharynx, GI and GU tracts. Bilateral breast implants present. There is a 9mm lymph node adjacent to the posterior left lateral aspect of the breast implant demonstrating a mild FDG activity. Overall, no hypermetabolic findings within the head, neck, chest, abdomen, or pelvis.
Impression:
Mild FDG activity associated with a 9mm lymph node adjacent to the left breast implant. the CT portion of the exam demonstrates a normal fatty hilum within this nose and is felt to represent a benign lymph node. Overall, no hypermetabolic findings to suggest local or distant metastatic disease.

FDG has to do with the radioactive glucose they injected into me. My doctor isn't concerned with this lymph node finding - he also said my labs were great. He prescribed Tamoxifen and I go back in 4 months for blood work and another PET scan. We also talked about me moving forward with my breast reconstruction, which as soon as I see my PS I am hoping to be able to do just that. He suggested mentioning this lymph node to him, so when I go in to surgery to have the expanders replaced with implants he can take a look at what is there and see if it's a lymph node, scar tissue or possible tumor and either test it or remove it if needed. It's possible it could have been swollen or infected because of a recent cold or something and could be absolutely nothing at all. To be honest, I'm not really concerned with it. I am confident with my army of doctors and regular tests, that if it were anything to be worried about that it would be taken care of correctly and timely. So tomorrow I begin my Tamoxifen, today I just hope the side effects aren't all bad! Things are good! Tomorrow I'll call my PS and schedule an appointment and see when we can start my fills again now that I am finished with treatment. I'm anxious to get these boobs over with!

I want to thank everyone who has been praying for me or even keeping me in their thoughts. I appreciate all your concern! I'm positive this year is going to remain on a good course....besides, our luck is usually bad every other year - so this year should be good for us. I'm really hoping that now I can finally finish reconstruction and start a new chapter in my book of life...the one I've been waiting almost 4 years for - so fingers crossed that I get there.

Finally! The 3rd Time's a Charm...

I spent most of last night and all of my waiting time at the oncologists this morning sorting through medical records from multiple doctors. I finally weeded through them, sorted them, put them in order and destroyed the many, many dupes. My files ended up being reduced to nearly half of the original size - which made it way more easier to discuss the files with my new oncologist. I went in there with an open mind, hoping for reasonable treatment options. After all this was actually the 3rd oncologist I've seen, though I must say I had no issues with the original doctor - I was just told they had an office closer to my house so I switched offices. It was the doctor in that office that told me 6 months.

We reviewed my cancer history, pathology, and treatments. I explained to him what my last oncologist recommended, and why I disagreed. I told him what I was hoping to achieve and that I had no issues with doing chemo if it was really necessary - but that I could not see any reason why it would be. After listening and looking through my records he performed an exam, during which he asked me if I happened to be a nurse. I said no and asked why. He told me that I was very knowledgeable on the subject and asked how I came to be so. I explained to him how I work with some breast cancer communities writing, answering questions, and helping women who have been diagnosed with breast cancer. He applauded my efforts for educating myself and helping others. I guess he doesn't get a lot of patients like me. I know all the ins and outs of my disease, but I tried real hard to make sure I didn't come off too strong. I didn't want him to think I was hard headed or would only do things my way. When I pointed out how Femara failed to do it's job of preventing my estrogen from binding with my cancer cells, he pointed out that it wasn't just the hormone therapy that failed me - chemo failed me as well. He told me that since chemo failed me and because I've already had a recurrence I am at a higher risk for it to return elsewhere in my body, but he agreed that doing chemo at this point is not the answer. Before he puts me on Tamoxifen he wants me to get another PET scan, which will show if I have any suspicious activity going on anywhere in my body. My last PET scan was clear but it had taken place back in April - a lot could have happened since then as I have not been on any AI meds. So providing that this next scan they are scheduling for the end of the month is clean and that my blood test is ok, he's totally in agreement with skipping chemo and going straight to hormone therapy. He even said that even if I hadn't requested this course of treatment, he still would have recommended it for me. If this scan comes back clean - and lets hope it does - all I would need to do is start a daily regimen of Tamoxifen, have my blood drawn quarterly to check the cancer markers, and get scans done every 6 months....and by scans I mean PET, Chest, Bone and/or Dexa scans. It looks like I just may have finally found the right doctor - how about that?